At some time in your life you’ll be faced with the very painful decision-making processes discussed in today’s Health Tip. Most likely it will involve an aged relative, but because death and dying are so random, you might be making similar decisions about your life partner, yourself, or (hopefully never) a child.
You’ve probably seen the unsurprising statistic that during the last few months of a person’s life health care costs skyrocket. During final illnesses, especially in a hospital setting, it’s assumed by most members of the medical profession that patients and their families want everything done to rescue the person from the jaws of death.
Everything can be very, very expensive. And for the patient, agonizing.
This idea naturally evolves into: at what point are we doing too much? These important themes are brilliantly addressed in Being Mortal by Atul Gawande, MD, subtitled “Medicine and What Matters in the End.” As Dr. Gawande relates stories about his patients and his own family, you’ll learn that none of us–physicians, families, patients themselves–have really come to terms with what medicine can and cannot do. What’s especially unfortunate is that doctors, already uncomfortable when death becomes a possible consideration, cover themselves by offering false hope and treatments that not only may be useless, but can render the patient’s final months a living hell. A word of warning. When reading Being Mortal, prepare yourself for that painful sensation in the back of your throat, the first warning that tears are coming.
Treatment vs comfort care
Stopping treatment and replacing it with end-of-life palliative care (comfort care) is a subject that’s been grievously overlooked during most medical education. The reasons for this are complex, but a major obstacle is that 98% of training occurs in an acute-care hospital setting, and this seriously skews a physician’s views about what constitutes good medicine…and what’s bad.
Big hospitals are so fixated on saving the patient at all costs that DNR (do not resuscitate) orders to withhold CPR (cardiopulmonary resuscitation) are not uncommonly ignored by hospital staff who fear the wrath of an angry family member (“You didn’t do everything you could for mom!”) or a malpractice suit.
Why were Miami Medicare recipients receiving twice the health care of La Crosse recipients? What was happening (or not happening) in Miami that doubled the health costs of La Crosse?
Cowboys and comforters
Based on highly complex surveys among physicians themselves, the economists concluded that doctors could be divided into two groups: the cowboys (do everything possible!) and the comforters (let’s do less and help prepare for the inevitable).
The cowboys were mainly male, primary care physicians with access to endless specialists. They were all conventionally trained. Interestingly, they received no financial benefit from doing everything. Rather, they were simply doing what they’d learned in medical school (“I can’t accept the patient is dying and there’s nothing I can do. I’ve got to do something”). The study didn’t mention that the specialists these doctors referred patients to did make money, and often a great deal of it, by doing everything.
The article selected La Crosse as its example of reduced health care costs, but didn’t mention that this city is home to Respecting Choices Advanced Care Planning, the nation’s first ever model to integrate family/patient decision-making into endoflife care. The comforter physicians described in the Harvard article are unique physicians, trained to give comfort rather than take action. And while Palliative Care is now a recognized medical specialty, the number of such specialists is woefully small.
Wisconsin rates an A on the palliative care report card. Florida, whose Medicare population is enormous in comparison to Wisconsin, gets a C. Also, keep in mind that in Wisconsin an elderly person’s family is often living in the area. In Florida, the vastly overworked primary care physician seeing far more patients than she’s comfortable with usually communicates via long-distance phone calls with family members scattered throughout the country who themselves may disagree on what’s best for mom. With internecine warfare among family members, the doctor is left with no option except to do as much as possible.
This dividing of physicians into cowboys and comforters is thought provoking. If there are just too many “do everything” cowboys, they’re the product of our current medical education system and patient expectations/demands plus a punitive medical malpractice system. And if there aren’t enough palliative care physician comforters (currently one palliative care specialist for every 20,000 patients with a chronic or terminal illness), then we need to rethink medical education altogether.
Palliative care and geriatric specialists report the lowest incomes of any specialty field. If a primary care doc goes on to fellowship training and becomes board certified in palliative care, her income will actually drop!
I can guarantee that at some point you’ll come face-to-face with a doctor’s cowboy thinking. The patient in question won’t even need to be suffering a particularly serious condition. If you (or someone you care about) turn into a human ping pong ball, bouncing from one specialist to another, scheduling multiple invasive tests or surgeries, you’ve arrived.
And if you get a call from Florida to tell you your 90-year-old wheelchair-bound, demented mother or grandmother is being scheduled for a hip replacement once she’s off the ventilator, which was needed when she developed pneumonia because of her immune-suppressing cancer chemotherapy, you’ll know for certain the voice on the other end belongs to one of the cowboys.
Be well,
David Edelberg, MD
I always await your blogs, Dr. E. In the main, I think they’re brilliant, insightful, and needed to be read by all. This is another! I couldn’t agree with you more about end of life decisions/treatment and what is often done.
Thank you for your practice, for your morality, for your insight, and for your amazing character. If the medical profession was filled with a small fraction of folks like you we would have a far better medical community.
James (NYC)
Hi Julia
I appreciate you writing but according to a meticulously researched study, this material is not an exaggeration. In the blog itself, there’s a link to the research. There’s a bit too much math for us common mortals but the conclusions are pretty chilling. I have a 91 year old aunt in Florida and I am frequently reining in her doctor who schedules foot surgery, cataract extractions, and colonoscopies.
I wrote this Health Tip last year about one elderly man caught in the treadmill of Florida health care
https://wholehealthchicago.com/2014/01/20/take-these-pills-or-youll-die/
Dr E
Luckily, I have had many discussions about this with my mother who is a very healthy 85 year old. After watching my 80 step dad take everything his doctors threw at him to “cure” his rare cancer, he ended up dying a grisly death with oozing open wounds all over his body. My mother says “no deal.” At her age she would rather get it over with and not take any drastic life saving measures. She tells me all the time, “death is an inevitability, not an option.” So many doctors think otherwise.
Be well.
Deb K.
Hi Calle
Thanks for your thoughtful response. The term “cowboy doctor” is from the Harvard article itself
Dr E
As a physician’s spouse who manages the business side of the practice, I normally agree with you, especially on medical economics. However, this article seems a bit exaggerated from my experience. My husband is a specialist and a traditionally-trained “comforter.” Some common sense and experience are all that are required to understand that there is a time for palliative care only. We have also faced these decisions with elderly parents following frank discussions (held well in advance) of the individual’s wishes. We have not experienced providers with aggressive approaches. I strongly believe that all families need to have frank discussions about wishes and expectations for care when there is no hope for meaningful recovery. Knowing that a family member has expressly stated their wishes makes decision-making at a difficult time much easier.
Julia
Many of us have known about this kind of aggressive care all of our lives.
If one was blessed with kind caring but realistic parents one learned this at a young age.
Being a horse person, I do object to your term…”cowboy”!
Do you have any real knowledge about how hard cowboys really live? Even Rodeo Jocks work hard and dangerous lives.
My term would be a greedy Washington elected official who thinks they know every thing. Who are into perks greed etc.
Come Feb calving season arrives here and cowboys who are hard working ranchers will be up pulling calves, rushing a cow for a C-section or trying to live through the snow storm or mud.
So let’s call this what it is…a disconnect from reality!
Having come from a Medical Center background, let’s dig deeper!
What med schools are these folks graduating from?
Who are their mentors?
Has anyone done an indepth study on their personality? What kind of training did the primaries have for end of life care?
And as for location..what ethnic groups or wealth indicators are present in Florida?
This research was poorly done, As too many unanswered questions.
Of course if the Northern location had a forced down your throat program then it would be giving less care at the end.
Cities and locations who broadcast this kind of thing are in Bamo’s back pocket.
My family dealt well with our parents and I as the one in charge had to scream to stop them from doing non needed procedures on my dying mom.
With my father we had him at home as we all desired, he wanted to be home to die.
With mom the young female resident was hell bent to up the bill.
If I had had the time money or a good lawyer we would have sued as it was insane about what they wanted to do.
I would not take a dead dog to that medical center again. Nor do we recommend them, it is a medical school center, and thy continue to practice this way.
I threatened the attending I would take her home to die if they didn’t back off. They kept me from staying with her because of patient families who had gun shot wounded teens and who became out of control.
Angry was not the word for our and her treatment.
They practiced on her, they caused her undo pain, they were and are jerks and worse.
Death comes let’s not torture our loved ones.
calle